ROCKLAND COUNTY (WCBS 880) — A Rockland County boy with a rare genetic disorder that limits what he can do has found friends in a virtual world. Now, he wants to give back and help connect other children who might feel isolated and alone.
In this week’s Stories From Main Street, WCBS 880’s Sean Adams introduces us to 13-year-old Jack Posnack, or as he’s known online, Jack Attack.
Jack was diagnosed with Familial Dysautonomia as a child and was given an initial life expectancy of 3 to 5 years.
“Familial Dysautonomia affects the autonomic sensory nervous system. So, everything that you don't think about he can't do,” explained Jack’s mother Robin Posnack.
She explains it’s a complicated diagnosis.
“No pain, no temperature regulation, the inability to produce tears, the inability to, believe it or not, he doesn't even understand where his arms and legs are. So if you were to shut your eyes again, put your hands out— he doesn't have any concept of spatial relations,” his mother told Adams.
It’s because of Jack’s disabilities that Robin sought out a way to level the playing field, and she did that through virtual gaming.
She created the Jack Pack, a gaming world in which her son could play with others.
Anyone who is being bullied, feeling isolated or suffering from depression is welcome to join. She invites them to join Jack’s livestreams or come to the house to join them in playing “Madden NFL” or “Fortnit