ST. LOUIS (KMOX) - Lyla McCarty and her family can finally afford the treatment to help her very rare, painful disorder. And it's all thanks to the money raised on her "dream bakery" website.
The 10-year-old from Arnold, Missouri has complex regional pain syndrome (CRPS). It gives her a pain in her leg that's described as being comparable to child birth, and there are many who people who have cut off their own limbs or committed suicide because of the pain. It's classified as a rare disorder by the FDA, effecting only about 200,000 people in the U.S.
To help pay for the special treatment, which isn't covered by the family's insurance, she was surprised with a bakery-for-day in Florissant, Missouri, thanks to social media sensation Charlie Jabaley – better known as Charlie Rocket. He and his Dream Machine Tour also set up her own website, Lylasdreambakery.com, where people can buy cookies from her.
It raised $318,000 in just the first two hours after the website went live on Tuesday night.
100% of the proceeds from every cookie sale are going straight to Lyla and her family. And that's on top of huge influx of donations to her GoFundMe page – which is over $147,000.
Charlie is traveling to more than 16 U.S. cities in his tour bus to give back to people in need, all while chasing his own dream of becoming MVP of the NBA Celebrity All-Star Game.
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