A local family is asking for help as their “bright and resilient five-month-old” daughter battles a disease so rare, it doesn’t have a name.
Iris LaValle was born with a mitochondrial disease without a name, because it’s so rare.
She has spent most of her life in-and-out of UPMC Children’s Hospital “facing complex medical challenges and undergoing life-sustaining care.”
Parents Casey and Amanda LaValle are both juggling Iris’ care along with new jobs and two other children, ages 7 and 2.
“The family’s days are filled with travel expenses, meals on the go, and mounting medical bills, all while relying on Medicaid and managing Iris’s complex care needs, including multiple medications and feeding supplies,” a GoFundMe reads.
Anyone that is able to donate to the LaValle family can do so through GoFundMe.